Fig. 2

Perception of information about NfL and ALSFRS-R. a NfL. Four questions addressed the perception of shared information about NfL: Q1 “Do you perceive the NfL as relevant for yourself?”; Q2 “Do you perceive the NfL as relevant for research?”; Q3 “Are you interested in the results of your NfL?”; and Q4 “Have you gained any information from the NfL?”. b ALSFRS-R. Four questions addressed the perception of shared information about ALSFRS-R: Q1 “Do you perceive the ALSFRS-R as relevant for yourself?”; Q2 “Do you perceive the ALSFRS-R relevant for research?”; Q3 “Do you have interest in the results of your ALSFRS-R?”; and Q4 “Do you have information gain from the ALSFRS-R?”. n Number of patients, NfL Neurofilament Light Chain; ALSFRS-R ALS Functional Rating Scale Revised